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你好

在 Rare Love,我们是一个由神经多样性、医学复杂的专业人士组成的团队,与罕见病倡导运动 (RAM) 和患者倡导盟友合作,致力于为罕见病社区人民的最大利益服务。

我们是稀有的,我们邀请 
加入以社区为中心的盟友船和以社区为基础的工作的运动。

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基于社区的合作

If you have a rare disease, subscribe to the Rare360 Perspectives, Insights & Experiences (P.I.E) program. By subscribing you will be amongst the first to know about earning opportunities for your lived experiences as a person diagnosed with a rare disease. All earning opportunities are set at the Fair Market Value as identified by the Rare Advocacy Movement. 

Subscribe by clicking on the button below.

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与合作

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